Monday, April 22, 2013

One of my worst fears

As a parent, from the time you find out you are having a precious child you dream of every moment being heaven and how wonderful and cute the baby will be. They are of course wonderful and cute, but theres this misconception when kids get a little older that we have as parents. We believe our kids should be perfect. I remember clearly several pre-kid days saying, "my kids will never do that". "My kids will never act that way". I will be a great mom, cook, clean, work, and go running! I just knew that I would be able to do it all. Until one day I realized I couldn't do it all, in fact I couldn't do close to any of it and my kids were far from perfect.

As moms we nit pick every thing our kids do. Why cant they be like so and sos kid? Their kids are so calm?! For a while I resented Brianna's special "needs". I didn't understand her and so it took me several years to really get on board with what in the world to do with her. Brianna's sensory disorder problem seems to have gotten worse. She over reacts to everything and she is way over emotional. She also had a huge bald spot in her head. So I took her to the dr and her dr did lab work. To my horror and utter disbelief her ANA came back positive, speckled AND homogeneous, as well as high SED rate. With all of the autoimmune problems and complications that I have there is a good chance that she too has something. Her doctor advised me to contact the pediatric rheumatologist in our area. With her lab results, her Raynauds, joint pain, rash, and hair loss its not good. To my horror again, the next appointment isnt until September! Normally, when people have a positive ANA they have one or the other either Speckled OR homogeneous. It is rare to have both. Which points very highly to Lupus or Juvenile Arthritis. With Brianna only being 7, I am scared to  death. I believe that God will take care of her no matter what but it still doesnt help my fears. 

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