Tuesday, October 1, 2013

Pumpkin Pie!!

I love love love her recipes! You have to be in the baking mood, but I just love them!!

http://glutenfreegoddess.blogspot.com/2008/10/vegan-pumpkin-pie-worthy-of.html

http://glutenfreegoddess.blogspot.com/2010/11/gluten-free-pumpkin-pie-with-praline.html

I will post some easier recipes soon, but these look sooooo good!! I love fall! <3

Newly diagnosed?

Recently some close family and friends have also been diagnosed with Celiac. Its crazy how many people are suffering from this disease. Its so important to eat gluten free or you will be at higher risk of cancer and several other autoimmune conditions. I will never know if I would be healthier had I been correctly diagnosed early on, but I can take action now. You are your only advocate. Doctors don't know everything so always go with your instinct!

Here is an updated list as of August 2013 of some ingredients that are gluten free. I will be making  a list of all our favorites soon!

http://www.celiac.com/articles/181/1/Safe-Gluten-Free-Food-List-Safe-Ingredients/Page1.html

Its a good resource! I know its overwhelming at first but you will feel a lot better if you stick with it!

Monday, April 22, 2013

One of my worst fears

As a parent, from the time you find out you are having a precious child you dream of every moment being heaven and how wonderful and cute the baby will be. They are of course wonderful and cute, but theres this misconception when kids get a little older that we have as parents. We believe our kids should be perfect. I remember clearly several pre-kid days saying, "my kids will never do that". "My kids will never act that way". I will be a great mom, cook, clean, work, and go running! I just knew that I would be able to do it all. Until one day I realized I couldn't do it all, in fact I couldn't do close to any of it and my kids were far from perfect.

As moms we nit pick every thing our kids do. Why cant they be like so and sos kid? Their kids are so calm?! For a while I resented Brianna's special "needs". I didn't understand her and so it took me several years to really get on board with what in the world to do with her. Brianna's sensory disorder problem seems to have gotten worse. She over reacts to everything and she is way over emotional. She also had a huge bald spot in her head. So I took her to the dr and her dr did lab work. To my horror and utter disbelief her ANA came back positive, speckled AND homogeneous, as well as high SED rate. With all of the autoimmune problems and complications that I have there is a good chance that she too has something. Her doctor advised me to contact the pediatric rheumatologist in our area. With her lab results, her Raynauds, joint pain, rash, and hair loss its not good. To my horror again, the next appointment isnt until September! Normally, when people have a positive ANA they have one or the other either Speckled OR homogeneous. It is rare to have both. Which points very highly to Lupus or Juvenile Arthritis. With Brianna only being 7, I am scared to  death. I believe that God will take care of her no matter what but it still doesnt help my fears. 

Wednesday, April 17, 2013

:)

Its been a while! Ive been dealing with in/out of the hospital severe health problems. My girls have also gotten every cold/virus/bacterial infection since December. So weird since last year they were hardly sick! So for the most part its been just enough to keep our heads above water let alone worrying about new recipes. I just started playing with some new recipes to try. Since its finally getting a little warmer I'm sure we will be using the grill a lot more.

Dinner last night was Grilled Chicken with Baby Rays bbq sauce, sauteed potatoes with olive oil, rosemary and garlic with some corn.
Brianna ate it all and said it was her favorite potatoes even though normally she wont touch anything but mashed potatoes. Riley ate all her corn and finally ate her potatoes but wouldnt touch the "dirty" chicken.

We have transitioned from Lactaid milk to Coconut/Almond milk which is a lot healthier and doesnt have the added crap in it.

I am still having a lot of problems so its hard when Jason is working. Tonight the girls had Perdue's Gluten free Chicken nuggets (Which are certified gluten free) and Ore Ida tator tots and McCans smiles. :)

Our past love of Bob's Red mill gf cornbread has left. I don't know if they changed their bag but just doesn't taste the same. We are going to try Pamela's gf corn bread. I found it around the same price on amazon which is a lot cheaper than the store.

For some reason Riley has been breaking out in a lot of hives again. Im not sure if its from food or outside spring time. She has been having a lot more problems with her asthma too. Brianna has had a bad cough for about month now too. Nothing seems to help. Its frustrating!

As a mom we want to make everything better and easier and sometimes its just not possible.

Monday, February 11, 2013

Good resource

http://www.naspghan.org/user-assets/documents/pdf/diseaseinfo/glutenfreedietguide-e.pdf

Friday, February 8, 2013

Prayers for Brianna

Brianna really needs some prayers. The doctors still cant figure out why she is so thin. She is under 5% BMI and is dangerously underweight. She is taking 2 pediasure a day but its still not doing anything. I really dont know what else to do for her. I dont want them to put her on feeding tube, but I dont want her to be unhealthy either. :( Im stuck in a hole right now. 

Monday, February 4, 2013

Hospital Care

Many families with autoimmune conditions know the dreaded stays of hospital and doctors visits. I remember my first few stays I was terrified even working in the medical field for several years didn't take the anxiousness away. Now, I guess I'm a "pro". We know when to go and when not to go. I can mostly anticipate what the treatments will be and for what is wrong. My oldest daughter is 7. We always knew there was something special about her. She walked early, talked early, grew substantially quickly and was very aware of her surroundings. We went through countless daycare situations. I will never forget one horrifying day when I went to pick up Brianna after one of my doctor appointments. I was early to pick her up because I had left work and gone to  my appointment just wanted to go home with her. Brianna was not even 2 yet, I walked in to find her daycare provider sitting on her to keep her in timeout!! I was in such shock that I really did not even know what to  say. Brianna was crying, screaming and I rushed over to get her. I took her out of that daycare almost immediately. I reported the lady to social services although they  never did tell me what became of that. We then registered her for the YMCA. I have to say that my YMCA was great. Soon after I found out I was pregnant with our second. It was interesting to compare Brianna to other kids her age. She had a hard time adjusting with  people, couldn't sit in her chair like the other kids, couldn't deal with noises or dark, or too much  light. The list goes on and on. She was and still is  superior to  her class mates in knowledge of colors, letters, books. She was reading to her preschool class 60 page books by the time she was 4. Still we knew that there is something different about her. She stopped growing and always had been at the top of  her growth chart. Slowly we noticed she had stopped gaining weight, getting sick all the time and her behavior was getting worse and worse. I've lost count of how many doctors we took her to.

 We started parent interactive therapy at 4. It had become a stark difference between her and other kids her age. I wanted to get ahold of it now, so that we were equipped to handle her. Its been a hard road with her, session after session. I did so much research on the effects of diet and dyes and ant inflammatory conditions. She had an endoscopy that diagnosed her lactose intolerance and inflammation in her gut. Not knowing as much as I know now I really wasn't too familiar with what that means. I bought soy milk for her to  drink, not knowing how bad soy can be especially for a little girl. She began chronically throwing up non stop all the time. I was missing tons of work, sleep, and with another little girl I was strained in every aspect of my life. My husband was working 2 hours away and was never home. It was horrid.

Long story short I had become increasingly sick and lost 45+ pounds not exercising I was living in the bathroom and doubled over pain all the  time. I needed blood transfusions and b12 injections along with iron and had gotten more than my bargain of pain, arthritis and other horrible things. I knew something wasn't right. I had several tests and none of them were showing what is wrong with my gut. My biopsies showed inflammation and lymphocytosis which my gastroenterology doctor told me was nothing! I was livid, exhausted, and sick! My heart tests showed more inflammation in my heart and another of other issues. I know that something is wrong I insisted. I switched doctors and she immediately went to town with all the testing she could do. It became apparent that I had inflammatory bowel and we needed someone to help. She sent me to Richmond to MCV and the doctor up there who specialized in all gut issues. He did a test for Celiac and my blood antibodies came back negative, then he did the genetic test and biopsies which came back stating that I had Celiac disease. I was told a lot of people don't show positive antibodies, especially when they have other autoimmune conditions because immune system is wrecked. Celiac disease is thought to be triggered by leaky gut and some other interesting things.

During this whole time of going through hell with Brianna and my own health Riley was having chronic hives, swelling, crying non stop all the time. I went through a number of daycare providers with her as well and she was too young for the YMCA. She was in horrid state all the time. I finally took her to allergist who did all these tests that our insurance didn't cover. (CRAZY EXPENSIVE) and NONE of them showed anything! It was so frustrating. I had to get epi pens because her reaction was getting worse, we did food journals and every which way trying to see what was triggering her problems. When Riley was 2 she wasn't talking, very very clingy still and was very quiet.  I had taken her to allergists, dermatologists out the wazoo. I had one dermatologist doctor who even tried to give her an antipsycotic medication  for her hives!!!! My therapist had suggested that she may be autistic  I was at my wits end with these poor kids. I knew we had to do something so when my tests came back in Sept 2011 saying that I had the genes for Celiac I immediately started the kids on a gluten  free diet. I didn't start mine until Oct 2011 because I had to have my biopsies which showed I was def having Celiac and my villi were blunted and damaged. I have permanent damage to my intestines and cant absorb nutrients like other people.

Slowly Riley's hives diminished  She started growing and started interacting more. I am amazed looking back at how she was then and now how much she has grown intellectually and height wise. She is still short but not as much as she was. She talks more and now she acts normal like most 4 year olds. She does seem to have some sensory issues still with noise, yelling and she has an anxiety attack when we go on rides but Im hopeful that this will be grown out of as well.  Brianna still has failure to thrive and fights to stay on the chart. She is under the 5% percentile for her weight and height. It has been a very trying scenario. She was diagnosed with extreme ADHD and mild Aspergers. She does a lot of weird things and says off the wall things. Everyday is an adventure!  We still do therapy and she is trying hard to do the best she can. She is on the lowest dose of medications that will help. She is still struggling with being gluten free and feeling different but she has grown a lot. She was recently in a play and while that was a very hard thing for her and me to get through she did it!

We just spent yesterday in the hospital with Brianna being sick and extremely lethargic and vomiting non stop for 2 days. We are home now resting but I was reminded of how much I appreciate not having to have chronic visits for her. She has a number of illness' right now and I remembered that she has been healthy really the past year this is the first time really getting sick. Before she was sick all the time. Since going gf the girls have rarely had ear infections. Riley's asthma had gotten a lot better until recently as well. I am hoping this is a rare time for them and next week I will be able to testify that they are well recovered. I still have many problems and live in and out of the hospital and doctors visits but I am so thankful that my kids for the most part are pretty healthy. They both have severe sleep issues which we are still trying to balance but we take everyday as it comes. Thanks for your prayers for Brianna and the rest of our family. 
"

Thursday, January 31, 2013

Menu Ideas

Day 1- Gluten Free Nuggets with Ore Ida tator tots, carrots and ranch
Day 2- roast in the crockpot with gf beef stock, mashed potatoes from real pototoes, green beans
Day 3- Tacos with Tostitos chips or any gluten free hard taco or corn tacos, rice, tomatoes, lettuce
Day 4- Shepherds Pie, meat, peas, mashed potatoes
Day 5- Gluten free Annies macaroni and cheese (blue box) and hotdogs (Nathans) or Kraft
Day 6- Hamburgers either with lettuce wrap or gluten free buns, you can make your own or use Schar or Udis (I prefer Udis)  Ore Ida fries
Day 7- Steak, grilled veggies
Day 8- Spagetti and scrimp scampi with green bell peppers
Day 9- Ribs with gf bbq sauce
Day 10- Home made pizza
Day 11- Tuna casserole with gluten free noodles and use gluten free cream of mushroom (Progresso) 

What is Celiac disease?

Celiac disease is an autoimmune disease that triggers your immune system to  attack itself when you  eat certain proteins, gluten, wheat, rye, barley. Some people even react to gf oats. The symptoms range from mild to down right debilitating. I have permanent damage to my intestines. I lost over 45 pounds without trying or exercising.




http://www.mayoclinic.com/health/celiac-disease/DS00319

Monday, January 28, 2013

Monday, January 14, 2013

In the Midst of your storm...

The girls are fighting, screaming at each other. The Tv downstairs drowns out some of the screeches of the expressions of sisterly love. "No its my turn, no mine" or " Your ruining it!" Having complete different personalities doesn't help with the always arguing over what they should play, who goes first, and who's fault "IT" is. Whatever IT is...
I lay down...My legs, burning from walking. My hands hurting and swollen. My eyes tired and red. My muscles aching from just being upright so long. The joints just yelling at me in my body, "why did you walk so much". Its frustrating in a sense to want to take your kids places and Need to go to the store but by the time I get to the store and walk in the door, exhaustion has set in and I feel an overwhelming amount of pain, and need to sit. My feet just hurt. Its the easiest way to describe the fiery fight my toes, arches, heel, and Achilles feel. The need to take the circulating blood out of my feet so I don't feel the pain anymore. Its most embarrassing when you are in a store and you have no other choice but to sit. When that happens it doesn't really matter where I am, today I sat on the floor. Don't mind me, just sitting in the middle of the aisle, yes I'm OK. Leave me alone. The girls climbing all over me, as if their existence on me will somehow take the pain away and their touch will set me free. I wish it was. Laying in bed contemplating how ridiculous life is right now. I have the overwhelming NEED to hit the reset button. I want to reset my life, be without pain, burdens, and responsibilities. Don't get me wrong I love love love my kids! I love their smiles, laughs, and snuggles. I yearn for those moments. I just don't want to be me right now.
But there has to be a lesson in here somewhere. Theres always a moral at the end of the story, people endure pain then the miraculous happens they get over it and move on. How do you deal with life when pain and frustration, disappointment are part of your everyday life? Everyday is not guaranteed to be a walk in the park. I have endured, lived, lost and am still enduring...
Some days it feels like one of those never ending cycles of when is it going to end? When we are in this cycle, we have to get out!!!
I wanted nothing more today than to just leave, leave everything. Have you ever had one of those days? Ever wanted desperately to have the "that was easy button". I don't believe I have ever had a day that I felt that I possessed the "easy button". God never said that our life would be easy though. Jesus for sure did not have the easy button. Who am I to complain? I have a roof over my head. I have a life giving church, and I have a few life giving friends. When I feel like all is lost I stop, drop, and roll!!
No, actually I don't. I couldn't get up once I get down...lol!
Yes Sometimes I have a sense of humor. So in essence I can smile, see, smell, and enjoy the life God gave me. I might not be able to take my kids to the Harvest festival, buy them ice cream, or take them to Disney like I dream, BUT when you have little I think you appreciate much. I appreciate every little thing someone does for me, says to me, or thinks of me. I enjoy the presence and the time I spend with my friends because they are so precious to me. I love feeling the light breeze across my face, and the gentle rays of sunshine that shine through the window in the car. I may get a rash from enjoying the sunlight a little too much but for that instant I feel God's warmth. I feel the heart. I look at the blue skies and see his miraculous work. If life always went the way we wanted we would be soooo bored. If all our wishes, dreams, aspirations came true what would we have to work on?

Where a Kid can be a KID

Having autoimmune conditions or allergies is exceptionally hard, but it is especially hard on children. Having two girls who have to  be gluten free too is often a reminder to them  how different they are. I've avoided Chucke cheese like the plaque because to me, it was a place over flowing with  delicious pizza aroma, uncontrollable laughter, and yet a reminder yet again to  kids who cant be included in the fun. I was elated to  find out that Chucke cheese has jumped on the band wagon to really make their slogan true, "Where a Kid can be a Kid". Chucke cheese has accepted that even kids with celiac and gluten intolerance want to be accepted and included in having fun. I spoke with the manager when  planning a small party with them and he was kind and compassionate, there was no attitude toward all my questions and he explained to me in detail on the phone and in person when I questioned him again to  make sure he was aware of cross contamination issues. Their pizza comes in its own container that can be cooked by itself  there by not allowing contamination. They did not even open it until it was on the table. I realized I had not brought my own pizza cutter and then to my surprise they have their own pizza cutters, also still wrapped in plastic that read gluten free on them. I was thinking that the kids might not like the pizza, but  both of my kids ate their whole pizza! I stole a bite and it  was actually tasty! They are pricey, normally 6.99 a pizza but we were blessed the manager comped our substitute for both my girls and really made our experience one to  remember. They also have gluten  free cupcakes available but I always make our own cakes so I'm not  sure how they are. I will be checking them out in the future though. I was so happy to  see my girls happy and enjoying their pizza just like everyone else. It will be an experience we will remember for years to  come!

Gluten Free Pizza! yummy and delicious!


Brianna's gluten free cupcakes and princess cake I made! :)

She loved it!!

Fun times! Being a kid!!

Gluten free cupcakes : ) I will do  another blog post with details about these! Have a  great day and  don't forget to live your life deliberately to have fun no matter what obstacles you are facing today!
 

Tuesday, January 8, 2013

Red Robin Review

Hubby and I decided to do a quick lunch date while the girls were in school. We went to Red Robin after hearing from several people how great they were. I have to say I am pleasantly surprised! The staff was very friendly from the moment we walked in. I have been given some looks and attitude at other places when asking for a gluten free menu but they didn't flinch. The waitress was very knowledgeable  I asked her about the fries and she informed me  they were fried separate and you can have them without the seasoning. They were yummy! I peaked at the list of gluten free items and ordered a burger, they even have gluten free buns (with an extra $1 charge). I was pleasantly excited when I saw how delicious the burger came out. The bun was nice and fluffy and not dry or burnt like some other places. The meat was fresh along with the lettuce and tomato. The burger wasnt greasy and just the right size. The fries were piping hot and freshly made. We even ordered another basket because its bottomless fries there! It felt so good to indulge in the little treasures so many take for granted. We will def be back there again in the future!